Wednesday, December 26, 2012
Sunday, September 4, 2011
Howard Update
As many of you know he has been on a study at the Huntsman Cancer Institute this past year. His body has responded incredibly well to the drug treatment. Essentially, the drug activates the immune system to attack cancer cells. The cancer that was growing in my dad's lungs and liver is completely gone. A risk, or side effect, of the drug is that sometimes the immune system is hyperactive and attacks the body itself. Recently my dad developed a severe case of colitis (a sign that the immune system is hyperactive). He began to have abdominal pain, sleep more, eat less, and lose a lot of weight. Finally last weekend he was admitted to the hospital.
His optimistic oncologist said the colitis was a good sign; it indicated that the immune system was still fighting off the cancer cells. In anticipation of this possible side effect of the drug, the study developed another drug to calm down the part of the immune system that was attacking the body, while still allowing the other part of the immune system to fight off the cancer. To the happy surprise of the doctor and all of us, his body responded immediately to the follow-up drug, and literally overnight he was awake, eating a liquid diet, and in typical fashion he was brightening the day of every nurse that came in to poke and prod him. After five days he was released to go home.
He is on a very strict diet, and he will be regaining strength for awhile, but he continues to face each day with gratitude and optimism. He and Babs have hired a Home Health type of company that will help with meal preparation, cleaning, errands, and any other need that inevitably comes up with their unique health concerns.
We appreciate your prayers and acts of kindness. If any of you wish to send your love, know he receives any comments here. As much as he would love to talk with each of you, I'm requesting that you please not call as his energy is limited.
Warmly,
Darcie
Thursday, June 10, 2010
Sans Photos
Played two days of tennis, two sets and one set and am playing again today. My partner has to do a lot of coverage as I'm limited in my ambulatory repotiore. I was most pleased with returning most balls hit to me, the exact percentage will forever remain a secret.
So enjoy my brothers and their wives. They are a loving lot, and we all laugh at the journey, past and present.
Going to sign up for the new study today at the Huntsman Cancer Center (my "Rat" action for the day).
Daughter Darcie, and family are visiting on the 27th of June. Am eager to see them all again.
Tag going in for surgery tomorrow, so we'll be at hospital. Mitch will keep you all posted. We're expecting good things for the little guy.
Alex invited me to participate in the Star Power Conference Opening at the July Conference. It's the first SP Conf. for Alex and his team and they are preparing a great one. Couldn't be more excited for them as well as for the opportunity to express some thoughts for the attendees. May even throw in a few humerous stories appropriate for the message.
Make it a great day.
Howard
Monday, June 7, 2010
Good News - Challenging News
GN: Went to doctor for Chemo cocktail #8, and was informed they are stopping my chemo (Docetaxel). That means my hair will begin growing back, legs will decline in edema, nose will stop bleeding, legs will gain strength, fatigue will reside elsewhere, and I'll be able to possibly play better golf!
[reason: The reason I was on chemo was to contain the spreading of my cancer. Prior to treatment, I had two lesions on hips and one on rib, and neither of those expanded or grew (GN)]
CN: They found a new lesion on my lung, so now I'm the proud owner of Lung Cancer. That, combined with my Prostate and Bone cancer give me a three leaf clover! All I need now is testicular Cancer and I'd have a four leaf clover!
GN: Am beginning on a new treatment-study (Ipilimumbab or a Placebo) with a shot of radiotherapy. This study is for "Subjects with Castration Resistant Prostate Cancer", and that surely qualifies me!
CN: Ipilimumbab sounds like a terrorist drug, but it's designed to get the natural immune system fighting the cancers (all three). If it doesn't show results, and if the side affects (too numerous to mention, however diarrea is mentioned quite often (just thought I'd share that) thus qualifying it for the CN area.
GN: My daughter Darcie, after I explained my new treatment said, "You're like a rat!" We both had a great laugh at that. However, this rat is intending to come out of this new phase better than ever, or contributing to the knowledge and research for the future cure of the big "C".
GN: My spirits are GREAT. My attitude matches. Physically, I feel good, and will be getting stronger now that I'm off the cocktails.
GN: My brothers and wives are gathering this week in SLC for a week of visits, games, cards, and tons of laughter. It is always a treat to be with them (five brothers still alive and wives like Babs - wonderful). I'm even going to try tennis today (better wear knee pads). Will have some photos of Bros and wives on next blog....and that's a promise.
That's it. Some change. Welcome continued prayers and good thoughts. They work.
Love to all,
Howard (The Rat)
Sunday, May 30, 2010
Nothing like good friends
As you journey through life, you meet so many people, some cast no memory, some remain for the moment then dissipate into space like a quiet flagellation, some stick around like a bad dream that continues to surface in your subconscious, and then there are those wonderful souls whose memories illicit smiles, warm your heart, draw you to them again and again, who fall within that wonderful category we call friends.
So many friends have written and extended their best wishes, prayers, hopes, encouragement, and humor, and their positive energy has cast a formidable shell around this cancer, keeping it contained and wondering where this force is coming from. I know it comes from love, faith, goodness, hope, gratitude, and a positive energy that emanates from the good souls of all these friends. Prior to my last cocktail (chemo) I had a scan of the bones after taking an infusion of some “nitro” stuff that allows the scanning machine to detect changes within the skeletal framework of the body. The doctor had told me that if it was spreading, they’d take me off the “Year” study I’m on, yet keep me on the chemo treatments. Fortunately, the scan showed no expansion or new spots on the bones! Still have two on the hips, and one on a rib, and they are not expanding or growing. So, all the prayers are working. Chemo is doing some good besides taking all the hair off my body (Babs says my legs are smoother than hers – how she knows we’ll keep to ourselves), making my legs swell, keeping fatigue as a too frequent visitor, and a few other side effects that are not worth lamenting about. All is good. They did detect a spot on my lung and took another c-scan last week and will get the results on that soon. I expect good news.
Coming back to friends, 37 years ago, I sold a home to Bob and Kay Martin in the Pinery in
Yesterday, Bob dropped me off at Rhinelander airport, Babs flew in, and we we’re picked up by our friends, Joe and Debbie Yost. Both are Stars we met through the Star Power network and they are gifted people. The have a beautiful home in WI as well as
Well, that about summarizes my blog today. Got Darcie’s blog the other day, and the rabbit craze has waned with two of the granddaughters, they continue to show brilliance (wrote and performed a 30 minute plus play for their parents and grandparents), explore nature, and learn from their wonderful parents. Also went to another softball practice and my hip has hurt ever since. Will report on that after seeing doctor. It feels like a typical pain in the @%#$. (How some might describe me at times in my life.)
My brother Merrill and wife Kalle are coming to SLC in the next couple of weeks, and they’re such a treat to be around. All my brothers and their wives are getting together and we’re so looking forward to great Brinton stories, old and new, as we always enjoy each other’s company.
Love to all,
Howard
Friday, May 7, 2010
Cocktail: They gave me two doses of stuff at the last one and maybe that’s what got to me. First was dose of Zometa, which is supposed to keep bones strong. Get it every three months, no matter the weather or season, and the first time I got shot it made me very ill with chills that aren’t associated with a joy ride. Then they gave me my normal chemo stuff next and the combo kept me feeling pretty weak for longer than the normal (7 days after). That, combined with taking a much stronger diuretic to lower the size of my legs, which are pretty big to begin with (all the muscle from years of athletic prowess plus an ample dose of inherited size from the Brinton genes), may have been what zapped me.
Legs: The size DID finally go down and I lost about 25 pounds in three days. I’ll not be writing any testimonials for the diuretic as a competition for Jenny Craig or Weight Watchers as it played havoc with some of the chemicals in my body. Things like potassium and others that I can only vaguely recall from my high school chemistry classes, from which I received a low C-. I’ll never take for granted the beauty of being able see blood vessels and tendons sticking out from my ankles again. They look so much better now. They are still a fraction of their prior selves in strength, but they take me up and down stairs, around golf courses, and they have been able to hold me up for at least two steps before the collapse, as I chase after a softball grounder.
Softball: Still engaged in practices. Two weeks ago, after a practice, the coach said, “Okay guys (all over 70, so fortunately he speaks loudly), tomorrow is our first game.” My excitement rose as he walked down the line of players, all taking off their chin guards, elastic bandages, tape, ankle and knee braces, handing out the schedule on a bright yellow paper. He handed one to the player on my right, skipped me, and handed one to the player on my left, and continued on. I didn’t make the first cut! I’ve always been one of the first chosen in pick-up games….and now, I didn’t even get a schedule!
Interview: On last blog, I mentioned that I’d done a two hour interview with Alex Charfen and didn’t know what he intended to do with it. He’s packaged and is selling it through the company (Star Power) and I hope many purchase it. After all, it is me! Here's a video of some of the interview: Howard Interview
Tag: My grandson Tag is going in for surgery on June 11 to have the head tumor removed. He’s looking good, is healthy as a horse, cute as a bug, and this will be a relief for all concerned. Keep your thoughts and prayers directed in his behalf. We’ll be celebrating Mother’s Day with his mom, her mom, and of course Babs. Hope all you Mothers have a day to remember…..you’re a special group. My mother was a saint, and I feel her presence with me always. She shaped my personality, formed my values, and she never put off a blog entry!
Golf Outing: 39 years ago, as a young sales manager, I hired a bunch of guys to sell land at a development in Colorado (it’s what took me to Colorado in the first place). Some of us were convinced we still had a few strands of elastic in our jock straps, so we created a softball team to play in a recreational league. From that group, there are 8 of us that have stayed in contact and are great friends, and we’ve taken golf outings twice each year for the last 10-15 years.
Family: One of the reasons for moving to SLC, was to be around family, and Saturday evening was a typical family event. My niece’s son Will (this is when you realize your getting on in years) was called to a Mormon Mission, and many in the family gathered to first, guess where he’s serve, eat, and then watch him open his letter to receive where he’d be going. I picked South Africa, and only missed it by a Continent, as Argentina is where he will be serving for the next two years. He’s a good looking 6’3” young man, just turned 19, and is very excited to launch on this journey.
Surgery: Remember all those vacations to sunny spots, laying around the pool, lathering yourself in sun tan lotion, rolling from side to side so your body could tan evenly, and sipping a cool drink? We looked so good. Well when you turn 70, those rays we absorbed early on in life seem to show up on one’s skin. I believe I mentioned going to a dermatologist and he burned off many skin cancers off my face and hands, well one didn’t seem to respond so he took a biopsy, and found it needed to be removed surgically. Tuesday was that day and you can see how I looked coming out of the doctor’s office (photo with bandaid), and how long the scar is with my pony tail hat (photo).
Idea: My friend Bruce Mulhearn mentioned to me about an exercise he did that had a great impact on his life: Namely, identify and list the 10 turning points in one’s life. Haven’t done it yet, but this cancer stuff is surely one of mine, and I’m looking forward to identifying the others. Starting Star Power was surely one of them as it introduced me to so many wonderful people.
Prissy? What do you do when your spouse calls you “Prissy?” Babs mentioned that lots of times, couples help each other clean the wax out of their ears. Candidly, that’s not something I signed up for when the preacher said, “….for better or for worse…” but she obviously does. She called me “Prissy”! Fortunately, my wax is so thick, I couldn’t hear her clearly and thought she asked, “Is she?” I responded, “Is she what?”
Love to you all,
Saturday, April 10, 2010
Cocktail #5
I worked out with Babs this morning and tired quickly, but it was a good re-entry into the exercise circle. I missed three workouts with "Huge Leg Syndrome". Babs has been concerned about gaining weight (I'm talking 2-5 lbs). She always, as a measure or test, tries on pants that, I swear, she wore in high school, complains she's gaining weight, and immediately cuts down on food intake. I told her everybody would think she's losing weight as long as she stands next to me. She smiled and still ate like a sparrow.
I had a C-scan and bone scan along with chest X-ray. Results were, I think, positive. I have a difficult time understanding our doctor, a brilliant and warm fellow, with a strong accent from India. On the last test three spots were detected. They are still there, and there may be a new one on the lung. The spots haven't expanded, and the two on the hips have calcified, which seems better than a hole and weaker bone. So I'll be going in for another series of scans in couple of months, after two or three more chemo cocktails, and will monitor the results and any changes. They think the one on my lung may just be a shadow, whatever that is. I'm continuing with same treatments. Also, love the warm blankets they provide when getting an infusion. Feels so good.
Got new glasses and it's so nice to see again.
Got a call from a past real estate acquaintance, Darlene Dipo, who owns a small office of agents in Draper, Utah, our new home town. In the past, Darlene had provided me transportation when speaking in SLC, and had taken CRS classes from me. She invited me to speak to her group of 10 agents. Last week I went to her office, sat in a very comfortable chair, with all in a circle, and we just chatted about business, success, dialogues, life, and it was a delight. Darlene has a very unique office, an old home, that sits right on the Draper parade route for holidays. Also, they are across the road from an open symphony, so they have many private parties for clients.....and speakers and spouses. Babs and I are looking forward to that this summer.
I visited Austin, TX, and Alex and his whole team. They've now got 40 employees and they are all young (young being easily defined as anyone younger than ones self..but I'm talking really young). I would say the average age would be mid twenties. All are college grads, excited about the company Alex is building, and enjoying their journey. Alex interviewed me in front of the company, we did it live and on film, for about 2 hours. We'd planned on only an hour, and time just flew by. He has a very good talent for interviewing, and it was fun to be an interviewee versus the interviewer. I don't know what he's going to do with the videos and I'll keep you posted. Also I was able to assist in providing input to their magazine, as well as this summer's Conference. It was a very worthwhile trip, felt pretty strong, however after the flight is when "Edema" set in.....and big time. I had some wonderful conversations with Alex and Cadey, his wife and partner, and what an outstanding couple they are. So much life experience, such a clear vision of where they want to go, and the energy and drive to get there. I'll be going back more frequently.
My brother Ralph and his wife Bonnie, you've heard me mention them before, have an incredible family. Two of their daughters, Jennie and Sara, caught the entrepreneurial spirit and creativity of their parents. They've owned, separately, different businesses, mostly in the crafts area, designing and producing some wonderful and beautiful products. They spearheaded (at least I assumed so because they were the only ones handling the money) a trade show with a number of other crafts people and we attended, buying some very colorful hair pins for the grand-girls and two beautiful earrings for Tennie (who recently turned 10 and went to the piercing place, no, not went, RAN to the piercing place). We hope she enjoys them. It's nice to see family members excel. Jennie and Sara are such wonderful mothers and examples to their families. Nice job Ralph and Bonnie.
I had a much anticipated visit last weekend from our dear friend Marcella Dykes and her son Steve. I've talked of Marcella and Steve often. Marcella has done my hair ever since I tried to have it dyed (from turning too gray) by another professional and it turned RED! I mean the old man red, not Lucille Ball red. And I remember sitting in Marcella's chair and she said, "Well, what can I do for you?" While my mind did wander for a split second, I said, "Cut it to the gray!" And she's cared for me ever since. She's navigated through two divorces, been a single mom for 9 years, has happily found and married her soul mate and provided another son to their mix.
Steve is the young man I began the "I'm the Best" five times every time I see him (from age 2 on - now nearly 10) and I put $5.00 into his college fund. Well it's automatic with him now, and he wrote me a note: Steve Dykes...I'm the Best X 10!
They drove 12 hours arriving Friday evening and we stayed up until 2:30AM reconnecting. Being the energetic soul she is, she attacked the back patio (we haven't done anything since moving in November 15th) with Steve, and they cleaned it up like a whistle! I mean, how often do you find friends who, on their short vacation, help you clean? It really helped us settle in and was so considerate of them both. They worked hard. I did my part in cooking for all during the three days, and it was a laid back visit with people you don't have to say anything to. They were very comfortable to be with and we had a great time.
Yesterday was Easter, and we were especially excited because our little "Tagmeister", the "Tag Man" or just plain "Tag", was coming back into town. Mitch and Joann journeyed to St. George, Utah, for a visit with Grandma Brinton, Mitch's mom, Julie. She really enjoys the grandchildren and is especially good with them. So we haven't had any Tag Time to speak of for ten days. When we were living in Colorado it was acceptable to keep contact through pictures, web, etc. However, with Tag within touching distance, we really look forward to seeing the little guy.
Tag's tumor has receded some, and I believe they'll be facing surgery within the next little while. Mitch and Joann are dealing with that question now and our thoughts and prayers are with them. We joined Joann's family for Easter dinner and it was so good to see Tag - Joann and Mitch. Joann has a great family that always makes us feel so welcome. Joannn comes from solid and wonderful stock (my old cattle metaphors are coming back). And Mitch's sire isn't bad either!
My friend Orly Steinberg is having double mastectomy today, think good thoughts for her. She's a wonderful lady.
Love to all,
Howard













